Thursday, May 16, 2013

Update on Kaden's Heart

Well...things have been really hard in some ways lately. For example, I've been going to the doctor almost every week for various tests and appointments. I even met with a geneticist, who was wonderful, but had to discuss with me every possible disorder that my baby could potentially have. Needless to say, its been emotionally exhausting, but at the same time Ben and I have been able to push through it.

I owe all my strength to my amazing husband. Ben has been so supportive and loving through this whole thing. I know that with him by my side, holding my hand, that I can do anything. Yesterday we had another ultrasound on the heart with our Cardiologist. We were really nervous and anxious for the news but at the same time we were still able to joke and laugh and be happy--just because that is our default for when we are together. It makes me so grateful to know that even in our darkest hours, Ben is still my best friend and someone I can always count on to make me laugh and smile through the tears.

Well yesterday our doctor brought us some good news...and some bad news. The good news is that Kaden is growing really well (over 4 lbs!) and the blood and oxygen supply to his brain and other organs haven't been compromised. He doesn't seem to have any other malformations in other areas of his body, indicating that his heart is most likely an isolated incident and that he doesn't have an overlying syndrome (however, we won't know for sure until genetic testing is done at birth). His heart seems to be holding on, and the good news is that for now his heart isn't going into complete failure. The Bad News: last ultrasound he was able to pump blood through the very narrowed pulmonary valve pretty successfully. Now, there is significant back flow of blood from the pulmonary valve and also the tricuspid valves. What our doctor thinks may happen now is surgery on both the pulmonary valve and the tricuspid--although we are still hoping that fixing the pulmonary valve will be the solution for everything else to fall into place.

So...what does this mean in the interim before Kaden is born? Well, because his heart is now having back flow, there is a chance he may need to come early. However, we want him to be as strong as possible for the surgeries. At my next echocardiogram, in about 3 weeks, the doc will determine whether to induce me early or let me go the full 40. We are praying that his heart is stable enough for him to be born full term.

We are trying to stay positive through all of this. We have already seen so many tender mercies, such as living so close the medical center that I can walk to all my appointments. Ben has also been given time off to attend every echocardiogram I've had. We are even just grateful that we live in a time where technology can find problems like this so that our baby has a chance. All in all, our faith is getting us through and now we just have to play the waiting game.

On a lighter note, here are some updates on my pregnancy:

First, I LOVE food! I am so starving all the time but I can only eat little bits at a time. It must be my stomach is so smushed in there. It actually is really great for Ben because he always finishes my plate:)

Second, the baby is so so SO ACTIVE! He moves so much and Ben and I will watch my stomach contort into crazy shapes as Kaden squirms all around. He even gets the hiccups a few times a week! I think that through all the throwing up and discomfort, pregnancy is worth it--just feeling my baby move inside me is the most incredible life experience!

Thanks for reading! Please keep Kaden in your prayers!

3 comments:

  1. Kaden has been in my prayers!

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  2. yay for all his squirming!! I'm also so glad that you got some good news. You and Ben are so wonderful for each other and so strong. We are praying that the next few weeks bring more healthy news and answers. Love ya!

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  3. He is already such a fighter! You and Ben have such an awesome relationship which makes everything so much better! We're so glad to know you guys! Kaden is always in our prayers.

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